| Acronym | Project name | Start Date – End Date | Activities |
| EDETECT | early detection of disease in cardiomyopathy mutation carriers | 2018 – 2022 | Data Management Plan, eCRF, Imaging archive, Datasharing policy/infrastructure, Catalogue |
| CURE-PLaN | Cure PhosphoLambaN induced cardiomyopathy | 2019 – (Ongoing) | Data Management Plan, eCRF, Datasharing policy/infrastructure, Implementation IT infrastructure |
| DETECTIN-HF | Determining the role of clinical and epigenetic risk markers in dilated cardiomyopathies and heart failure | 2018-2021 | Catalogue Portal, Request procedure, Data Access Policy |
| HartslagNu | 2020-2021 | Setting up request form and request procedure, Data Access Policy, website content, data dictionary, and assessment criteria for requests. Check on Data Transfer Agreement and Privacy policy. | |
| PREDICT2 | 2019 – (Ongoing) | Data Management Plan, eCRF, Datasharing policy/infrastructure | |
| eCG Family Clinic | 2021-(Ongoing) | Collecting information for and writing the Data Management Plan | |
| CAPACITY1 | Cardiac complications in patients with SARS Corona virus | 2020-2021 | Data Management Plan, eCRF, Datasharing policy/infrastructure, Implementation IT infrastructure, Coordination Data Access Committee |
| CAPACITY2 | Cardiac complications in patients with SARS Corona virus | 2021 – (Ongoing) | Data Management Plan, eCRF, Datasharing policy/infrastructure, Implementation IT infrastructure, Coordination Data Access Committee, Implementation questionaires (PROMS/PREMS) |
| Umbrella (NWO Open Science) | Umbrella HEART NL (Umbrella HEreditary heARt disease daTabase of the Netherlands) | 2021 – (Ongoing) | Developing a national database that automatically extracts data and acts as an umbrella resource for existing data(bases) used in research and diagnostics to stimulate combination and re-use of data to improve cardiogenetic patient care. |
| PLN Biobank | PLN Biobank | 2021-2021 | Preparation of documents for review by biobank review committee et doel is het prospectief verzamelen en opslaan van bloed met bijbehorende gegevens met het oog op toekomstig fundamenteel en translationeel wetenschappelijk onderzoek voor het testen van potentiële nieuwe behandelmethodes |
| Beoordeling DMPs Hartstichting | 2018-(ongoing | Collaboration with regard to advice on, assessment and training in data management plans (workshop) that the Heart Foundation requests from its researchers | |
| DEFENCE | Cardiac complications in patients with SARS Corona virus | 2021-(ongoing) | Data Management Plan, eCRF, Datasharing policy/infrastructure, Implementation IT infrastructure, Coordination Data Access Committee,Implementation questionaires (PROMS/PREMS) |
| CORFU | Cardiac complications in patients with SARS Corona virus | 2021-(ongoing) | Datasharing policy/infrastructure, Implementation IT infrastructure, Coordination Data Access Committee,Implementation questionaires (PROMS/PREMS) |
| Heart4Data | 2021-(ongoing) | Datasharing policy/infrastructure, Implementation IT infrastructure | |
| Check@Home | 2022-(ongoing) | Datasharing policy/infrastructure, Datamangement plan | |
| ERN Guard Heart | 2022-(ongoing) | Datasharing policy/infrastructure, eCRFs,Coordination Data Access Committee |
